Baby gifts spread awareness for newborn screening

Every baby born in Western New York Hospitals in August and September will go home with a special gift. Representatives from Hunters’ Hope, Credit Unions of Western New York, and the Basil Family of dealerships recently visited the maternity units at Women’s and Children’s Hospital of Buffalo, Sisters of Charity Hospital, and Millard Fillmore Suburban. They delivered special burping cloths, reminding their parents that children born in New York State are screened for more than 40 diseases, including Krabbe and other Leukodystrophies, at birth.

“I think that there is not enough knowledge out there so we’re happy to help promote that and help share that,” said Women & Children’s Hospital Director or Women’s Services Linda Hubbard. “I think a lot of parents don’t realize that heel pricks are even done. And it means so much. A simple diagnosis and early diagnosis can help us treat babies and lead them to perfectly normal healthy lives.” For the Hunter’s Hope Foundation, named after Jim and Jill Kelly’s son Hunter, who lost his life to Krabbe, educating families about the importance of newborn screening is key.  “This is just one little step to help plug away at that,” Executive Director Andrea Moran said.  “But we’re thankful to know that as a foundation we’re able to help over four million babies born in the United States each year, and certainly the babies here in Western New York. So we start here locally and we’ll continue education people here, and across the country.”

The baby gifts were a way to get the word out about the Hunter’s Hope Foundation Every Step Walk on Saturday, September 27th in Como Park in Lancaster.
Winging It’s Lauren Hall will serve as emcee for the event, which promotes and celebrates universal newborn screening. Learn more and sign up at everystepwalk.org.

 

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